End of Week two in Oakland Lodge (St. Luke's Hospital)
This is only going to be a short blog to keep you all updated on the progress of my radiotherapy and my experience of living in the Lodge. To say that my life has changed over the last nine months is a total understatement. I have had to deal with so much, not only my diagnosis of Cancer, but in chronological order, as follows:
Time Line
- October 2015: My initial diagnosis on 2nd October 2015 and subsequent long term sick leave from work.
- Late October 2015: The news that there was not just one tumour but three, two of which were deep and too close to my ribs for comfort
- December 2015: My bad reaction to the first chemo (T.C. chemo) and hospitalisation where it was said that the Chemo was killing me quicker than it was killing the cancer
- January 2016: My radical surgery - a bilateral mastectomy, basically the amputation of both my breasts.
- January 2016: The sudden death of my Mother in Law the day after my discharge from hospital
- January 2016: The organising of my Mother in Law's funeral and subsequent re admittance to hospital with severe neutropenia, sepsis and chest infection. I remained in hospital three days short of one month.
- February 2016: The utter joy at being told by my surgical oncologist that I was technically cancer free after my surgery
- February 2016: The utter devastation at being told by my Chemotherapy Oncologist that I had residual cancer cells and more chemo was necessary, that the first chemo had not reduced the tumours, and the remaining tissue was riddled with residual cancer cells. That more chemo was necessary.
- February 2016: Going through very harsh chemo (AC chemo) and finding out that the TM (Tumour Markers) in my blood were not really reducing.
- March 2016: Gerry falling ill with Crohns Disease and needed an ambulance to hospital.
- March 2016: Further admission into hospital again with neutropenia on two occasions during this chemo, but I was not going to let them stop until the course was finished.
- March 2016: Gerry being admitted into hospital for surgery to remove part of his small intestine, having to cope battling cancer, going through treatment, looking after my hubby who was very poorly and looking after my sons and our home.
- April 2016: beginning a third lot of chemo (CMF Chemo), discovering that the chemo was not as harsh as the first two and managing it fairly well.
- May/June 2016: Beginning radiotherapy so that chemo and radio can work together to reduce those tumour markers.
- June 2016: Finding out that tumour markers are not necessarily accurate and that it can mean that the cells are still there but merely less active - but still there with a high chance of returning.
- June 2016: Moving into the Lodge in St. Luke's
Besides all the above taking place, I also kept myself busy with hobbies old and new, becoming involved with the PDST helping to teach teachers how to incorporate coding into their lessons of numeracy and literacy, helping my colleagues by collating all exam results for all classes throughout the school, reading, lots and lots of reading, meeting friends for coffee etc. It is no wonder that I really cannot get over the fact that this nine months has flown by at the speed of light. It has been chronic, without a break from one disaster or another. Yet still I have tried to find the 'sunnier' side of the street, but I do ask myself, "Will we ever get a break?"
Sanctuary - at last:
As I had previously mentioned in my earlier blog, Oakland Lodge is the epitome of peace and quiet, calm, relaxation, inner peace and harmony. You are transported from reality and given 'Me' time. Truly 'Me' time, yet it is not time spent on 'wallowing' in the fact that we all have cancer - St. Luke's is the only hospital in Ireland that is totally and solely dedicated to the care and treatment of cancer patients - Yes now and again, when chatting one to one with some of the other 'residents' of Oakland Lodge, there is naturally some comparing of symptoms, treatment, hints and tips. We are all there for radiotherapy, some of us (a handful) are receiving both chemo and radiotherapy at the same time. We do not dwell on our situation but make the best of it. We play pitch and putt, go to art classes, go to relaxation sessions, have beauty treatments, have reflexology sessions, socialise in the evenings listening to music and chatting and laughing, or sitting in the library/sitting room area reading peacefully, sitting quietly in the gardens listening to life going on all around you or simply going to our own room and taking much needed naps or going to sleep for the night. It is unreal just how fatigued receiving chemo and radiotherapy makes you. But all the above helps you to cope with it.
I returned to the Lodge last Tuesday to begin my second week of radiotherapy. It was a Tuesday because of the Bank Holiday Monday. This will add a day on to the end of my treatment. I drove myself to the Lodge having left Gerry that morning at Tesco. Gerry had woken up with a strange feeling in the back of his mouth. His tongue was swelling and his throat closing. I managed to get him an appointment with the doctor for 10:50 am. I however had to leave in order to get to the Lodge and on to St. Jame's Hospital for my radiotherapy. As I was getting into my car to leave and Gerry into his van, Elaine (my neighbour) came over to wish me well and gave me a beautiful candle holder in the form of an angel to light in my room, we hugged and yes we had a few tears, but I felt so totally appreciative of Elaine's kindness and concern and appreciative of the lovely neighbours that surround me. Everyone has been wonderful. We said our goodbyes and Gerry and I headed off to Tesco before I left so that I could stock up on healthy nibbles for when I was in my room of an evening. We dashed around tesco and then we too hugged goodbye and headed off on our seperate ways, Gerry to the GP re his throat and tongue, and myself to Rathgar.
I pulled into the parking space outside the Lodge, as I opened up my car door and started to climb out, my mobile rang, it was Gerry, I quickly said "Honey, can I call you back in two minutes, I am just getting out of the car with bags etc to take up to my room!" We hung up and I headed into the lodge and picked up my room key. I headed up the corridor, up the stairs and let myself in. Clean bedding was on the bed and I opened up the windows to let in some fresh air. I then rang Gerry,
"Hi hon how are you and what did the doctor say?"
Gerry replied,
"I am on my way to hospital, to St. Vincents!" Well you could have knocked me over with a feather!
I could not believe it, not again, what the hell now! I wanted to scream, to shout, to punch the nearest idiot... I just wanted to explode, not with Gerry of course, but with this constant reign of shite! It appears to be never ending. The doctor was not sure what was wrong and felt that hospital was necessary. I was once again worried about Gerry "Please God, do not let this be anything serious, not now please not now!" I then wondered if it was even worth saying such a prayer, because right now I feel that the 'Big Fella' in the sky has abandoned us, has decided that we just have not had enough shit thrown at us, so he was just going to add more and more. I can understand totally why people lose faith, no this is not God's fault I understand that, but Dear God! surely it is our time to be given a break? I headed downstairs as it was time to go for radiotherapy. Off I went and radiotherapy was administered I then returned to the Lodge. I headed up to my room and had a quiet lie down, trying to gather my thoughts. I rang the hospital and spoke to Gerry, Gerry in turn was still waiting to see a doctor. I took up my book and headed to the gardens. I managed to get the swing seat and rocked gently as I read my book. I then rang my sister. We had a lovely chat.
It was getting cooler so decided to return to my room, a warmer top was needed. As I approached the steps leading up to the front door, my toes (which I have to add here, have no feeling thanks to the initial chemo I had nine months ago), caught the lip of the first step, I came crashing down onto the steps and landed fully and very heavily onto by breastbone. The edge of the steps above smacking right across my mastectomy sites, crashing my breastbone into solid concrete. My head banged onto the top step luckily cushioned by my ear and glasses. Oh Lordy, I could not breath, move or speak, the pain was dreadful. I could hear a noise, a shout then groaning. It was coming from me. Barry, the male carer in the lodge came tearing from behind the desk. He gently helped me into a sitting position, he had a glass of water and in no time at all a wheelchair, into which he helped me. Before I knew it I was being wheeled to the main hospital.
I was in such awful pain that I began to cry, In fact I sobbed and could not stop. I could barely speak. I think that this was a pent up release of all that had gone on for the past nine months. I finally calmed down and I was admitted onto the ward for over night observation with an x-ray booked for first thing in the morning. I still had not heard from Gerry. A friend was called who kindly came to the hospital and rang my sister and then Gerry, letting them know what had happened. Gerry informed us that he had suffered an anaphylactic type reaction to something that he had either eaten or breathed in, and thankfully was now home. My sister after hearing of my fall, was on the boat within the hour and on her way over. My friend offered to pick her up. Diane arrived at the hospital just after midnight. It was fantastic seeing her. She spent the night sleeping in my room in the lodge. The next morning Diane came over to the ward and sat with me for the whole morning. I was sent for x-rays, and thankfully there was no crack in the breastbone that they could see, just badly bruised. I was told that should the pain increase a different xray would be given to look deeper into the bone, it seemed to become easier to walk, but lifting myself out of a chair, or off a bed hurts like crazy. I was discharged from the ward with strict instructions to return if the pain did not ease or became worse, I was given painkillers and then headed off to Art class. Diane attended with me and we had a good time deciding what to paint. We left for an early lunch as we had to be on the bus for radiotherapy. Thankfully the fall did not affect my treatment. Diane was allowed to come into the radiotherapy room to see the machine and see how I was prepared for the administration of the radiotherapy. When it was about to be administered, she and the radiographers left the room and I was nuked.
I am now chilling writing this blog, I did say it was only a short one, but with all that has happened this week it has turned out longer than planned. Let us hope that next week is a better week with no more hiccoughs. I think we have had our fair share at this point.
Here is the collection of paintings to date.
Have a good weekend folks, please keep up any prayers you may be sending up for us, and if you have foresight the lotto numbers would be appreciated ;)
P.S. Sorry just had to add this to the list of woes, today Gerry fell whilst on a roof, hurting his shoulder... He now has little movement and a bit of pain. Looks like another trip to the doctors for Gerry, We will have shares in the surgery before long!!! If anyone has a voodoo doll with our faces on it and I find you... well, start digging now is my advice ....